Daniel DeFabio’s info is below.

This is just a quick list of some news and events for The Disorder Channel. Please check our home page for more.

Our latest film “Life After Diagnosis Day” premiered April 16, 2023

June 5, 2023 Daniel speaks at BIO, Boston after a screening of our films.

May 2023 We led our RAREly Told Stories Workshop on how to make a rare disease documentary with Global Genes.

June 26th 2022 Bo Bigelow received the Rare Impact - Caregiver and Advocate Award from NORD in Cleveland.

For info on Menkes Syndrome go here.
For info on USP7 or Hao-Fountain Syndrome go here.

If you’d like to screen some of our films go here.

For info on Daniel DeFabio’s appearances as a speaker go here.
For Daniel’s role as Director of Community Engagement at Global Genes go here.

Email daniel (a t) rarediseasefilmfestival.com
or Bo (a t) rarediseasefilmfestival.com