ROL speaker signup 1 — The Disorder Collection

Join our roster of the rockstars of rare.

We know you have a voice worth hearing. And a message about an aspect of rare disease.

We want to amplify that message.

We’ll do our best to get you in front of your audience, as often as possible.

We invite you to join Rare Out Loud, our program that places speakers at rare-disease events all over the world.

Fill in this webform to get started, and then we’ll be in touch.

QUESTIONS? Email us here.

Name

First Name

Last Name

Organization

If you aren't affiliated with any rare-disease organization, please state "None".

Email

What are your area(s) of expertise?

Please list all areas in which we can consider you an authority or expert, based on your specific background or experience. (Examples: Batten Disease, Spinal Muscular Atrophy, podcasting, artificial intelligence, starting a nonprofit, mental health, clinical trials, the importance of inclusion in schools)

What are your primary goals when you speak publicly?

Please be specific. (Examples: Find scientists to become collaborators on my disease, raise funds to support research, grow my podcast audience, sell copies of my book)

Do you have any need for special accommodations or any limitations on your availability?

Please list all that apply to you. (Examples: Not available in the month of September, must have wheelchair-accessible entrance)